The Journey Begins

Featured by Candace, posted in My Story

Thanks for joining me!

Hi, I want to share a little backstory

  • When I was 7 years old I was diagnosed with partial seizures. My doctors medicated me with tegertol. When I was about 14-16 years old my doctor started giving me Clonzapan (I had absolutely no idea of the side effects of clonzapan or how addictive it is.
  • About 5 years ago I started having a lot more issues with my seizures, I was also having a lot more stress. One of my hospital visits, my neurologist mentioned I might have pseudoseizures instead of Epilepsy seizure like I had previously believed. Well I had know idea what pseudoseizures were, when they told me, I was making the seizures happen, well I refused to believe this, matter fact I was offended. Fast forward a year later, I was hospitalized again for about 2 weeks, they did a full week of a EEG, and they told me this time, I have both, epilepsy and pseudo seizures. So they medicated me again with Keppra 500 twice a day, Tegertol 200 Milligrams twice a day and the biggest poison of them all Clonzapan. Yes I know Clonzapan does control seizures really well however the side effects are horrible.

Last year, I decided to seek help for my depression and anxiety, they gave Zoloft 150 milligrams a day and Buspar 10 milligrams 3 times a day. My anxiety medications have helped my seizures so much ! So it brought me more understanding of what my doctor’s told me about pseudo seizures.

I also take care of my grandma who has dementia & a few times when my seizures were causing me issues I’d use her CBD oil and it worked faster than my tegertol.

Here lately I’ve been researching about CBD oil and I’ve read how it’s helped people with seizures. I decided I wanted to document my experience with going off my seizure medications & using CBD oil.

I am praying it works because My medications have caused me so many issues with the side effects since I was 7!

Btw I’m dyslexic so grammar isn’t my best subject and sorry this was so long 😘

Good company in a journey makes the way seem shorter. — Izaak Walton

Seizures in Sleeps

by Candace, posted in Uncategorized

I started having seizures in my sleep when I was 13 years old. Yes they are terrifying. It is rare that they’ll kill someone but it is possible. I wanted to share some tips on how to prevent them from being deadly or what’s helped me over the years.

1- find medications that’ll work for you. If your taking a certain medication that doesn’t work, try another. It took my doctors a few different medications before I found a combination that works.

Tegertol and Keppra have worked the best for me.

2nd Make sure, you don’t have anything near your head at night. (Blankets, night stands)

3- Try to relax before you go to sleep. Trust me I know having seizures in your sleep can make your anxiety levels high before bed. But find something to take your mind off seizures. I personally watch movies and Pray.

Back On My Meds

by Candace, posted in My Story

The seizure I had last week really freaked me out. I hadn’t had a seizure like that in a really long time. So today I went to my doctor & got my Tegertol and Keppra refilled. Yes the side effects suck but they control my seizures.

My doctor said it best about CBD Oil it’s like putting neosporen on a sore but on the brain.

She started talking about brain damage seizures can cause that aren’t referral. So I definitely got a pep talk and a reminder of how dangerous seizures really are.

I do plan to keep taking CBD Oil because it does help with making my day better.

Update From Last Night

by Candace, posted in My Story

I didn’t have any seizures but I did end up taking Tegertol. (can’t remember if I mentioned that in the previous blog) I know the medications getting out of my system could’ve caused the seizures the other night.

My plan tonight is to take a half Tegertol and a half tomorrow. If I have issues this weekend, I’ll go to my doctor on Monday & least get my Tegertol refilled. Fingers crossed I don’t have any issues though.

Trying Not To Be Discouraged

by Candace, posted in My Story

I am trying not to discourage from last night. It was the first time in a long time that I had a seizure.

I decided to Up the dosage of my CBD oil to 10 MG.

I’m also going to take half of a 200 MG Tegertol and three fish Oil omega

Also on of these 🔽🔽 Medical Marijuana it’s 35 MG.

praying this works better than last night.

by Candace, posted in Health, My Story, The Beginning

Last night was rough. I was wakened by a Seizure then about two hours later another seizure.

I’m a bit disappointed at the moment. I’m not sure what to do. Should I Up the dosage of my CBD Oil ? Should I get my seizure medications refilled?

I’ll Keep Ya’ll updated on what I decide.

Probably get my medications refilled but continue to use the CBD Oil.

It’s been a Few Days- No Seizures But…

by Candace, posted in Health, My Story, Uncategorized

Last Night was the first night, I didn’t take any seizure (Tegertol and Keppra) medications. I had zero seizures however I woke up extremely dizzy and nausea. I think I’m starting to feel the withdrawal effects from them. I knew that was a possibility.’

I’m now taking .5 Milliagrams of 300 CBD oil, 2 omega Fish Oil. Along with my anxiety medications Buspar and Zoloft.

Fish Oil and Seizures

by Candace, posted in Health
  • I was reading recently how Fish Oil can help with seizures. I thought I would share some info that I was reading
  • A fatty acid abundant in fish oilcould yield a new medication for the treatment of epilepsy, a new study suggests, after finding that it reduced seizures in mouse models. Researchers say that supplementation with the fish oilcompound DHA could help to prevent seizures.

Day 2

by Candace, posted in My Story, The Beginning

Good News I had no seizures!

Yesterday after taking the CBD oil I felt really good and woke up refreshed.

My anxiety levels were pretty high before I went to bed but it was just out of fear maybe the CBD oil wouldn’t work but I kept telling myself this will work.

Now about Last night and what I decided to take.

So last night I decided to take 1 200 Milligram Tegertol (My normal is 4 200 milligrams at night) and 1 half of a 500 Milligrams of Keppra (My normal is 2 500 milligrams)

last night I took one of these about two hours before I went to bed.

It looks like this I also took 3 Omega Fish Oil and .5 mL of CBD Oil 300.

Tapering Off My Seizure Medications

by Candace, posted in Uncategorized

Last night was the first night I started to tapper off of my medications.

Last Night I only took two Tegertols and 1 half Keppra.

Since I knew my anxiety was going to be very high I took two extra Buspar so it would help my anxiety. I also took 3 Fish Oil Omega

Today my dad went an bought me a bottle of CDB oil and one for my grandma (she has dementia) so I won’t be using something she really needs)

I’ll write more about how tonight goes, almost all of my bad seizures happen in my sleep. So that’s why nighttime is my biggest concern as my seizure medications leave my system but I’m trying to stay positive